Call: 03335 777113
Our charity helpline runs Monday to Friday between 9am and 4pm, with a call back service should you ring out of hours.
All calls are answered by someone with a lived experience of cauda equina syndrome who understands what you are dealing with, and the many concerns you may have.
The helpline runs to offer support to people affected by cauda equina syndrome and those who think they may be experiencing the Red Flags and would like some more information and advice.
We also deal with enquiries from healthcare professionals who are supporting patients, and anybody wanting to know more about the work we do and services we offer.
If we are unable to take your call, please leave a message on our answerphone or email us at [email protected] and somebody will come back to you.
“I contacted the charity helpline about my Red Flags, I had been dismissed from A & E but after speaking to the charity about my symptoms I returned and with the extra knowledge I was able to explain more about my genital numbness and was then sent for an MRI and surgery that day”
Connect service caller
“Being able to speak to somebody on the phone about my struggles after leaving hospital really helped me. I was given lots of advice about where to find help and how my GP could support me”
Connect service caller